PATIENT TOOL KIT
Equipping and Empowering every “Newly Diagnosed Patient”
with a Cancer Tool Kit immediately upon diagnosis.
Expertise:
Engage an Oncologist that is experienced with Cholangiocarcinoma. A critical distinction: Knowing ‘of’ Cholangiocarcinoma is not the same as ‘having experience’ with Cholangiocarcinoma – choose wisely. Oncologist:
Engage an Oncologist that is open and approachable to your observations, suggestions and questions. Hospital:
Get treated at a major well resourced hospital that is experienced and current with Cholangiocarcinoma – including treatments and trials options Primary Origin:
Know your primary tumour, is it Intrahepatic (In the bile duct within the Liver) or Extrahepatic (In the bile duct outside the liver) MSI /PDL Status:
Ask your Oncologist for an IHC test to discover MSI-High and or PDL-1 Expression, this is very important before proceeding with any form of treatment program – you may qualify for immunotherapy. Also view Immuno 101 for Patient and Caregivers Molecular Profile:
Get your tumours biomarkers tested, this Molecular Profiling provides a road map and vision to available treatments and trial options. Engage & Connect:
Join a Cholangiocarcinoma Group on Facebook, engage with others who are like you. Our groups have considerable patient and caregiver experience and are connected worldwide. Remember:
Understand that shared information is powerful it improves outcomes and creates new realities for all of us struggling with Cholangiocarcinoma. Sharing is a two way deal!
Engage an Oncologist that is experienced with Cholangiocarcinoma. A critical distinction: Knowing ‘of’ Cholangiocarcinoma is not the same as ‘having experience’ with Cholangiocarcinoma – choose wisely. Oncologist:
Engage an Oncologist that is open and approachable to your observations, suggestions and questions. Hospital:
Get treated at a major well resourced hospital that is experienced and current with Cholangiocarcinoma – including treatments and trials options Primary Origin:
Know your primary tumour, is it Intrahepatic (In the bile duct within the Liver) or Extrahepatic (In the bile duct outside the liver) MSI /PDL Status:
Ask your Oncologist for an IHC test to discover MSI-High and or PDL-1 Expression, this is very important before proceeding with any form of treatment program – you may qualify for immunotherapy. Also view Immuno 101 for Patient and Caregivers Molecular Profile:
Get your tumours biomarkers tested, this Molecular Profiling provides a road map and vision to available treatments and trial options. Engage & Connect:
Join a Cholangiocarcinoma Group on Facebook, engage with others who are like you. Our groups have considerable patient and caregiver experience and are connected worldwide. Remember:
Understand that shared information is powerful it improves outcomes and creates new realities for all of us struggling with Cholangiocarcinoma. Sharing is a two way deal!
We believe the power of the Globally Connected Patient will prove to be a vital link in realising the cure. Together we are the Collective sum of all trials, Experiences, Knowledge and Wisdoms, we see all the results as they unfold. – A new phenomenon only just beginning to be realised. Improving Outcomes and Curing Patients with today’s knowledge TODAY!
Please help us to
- EQUIP: Every "Newly Diagnosed Patient" with a Cancer Tool Kit immediately upon diagnosis.
- EMPOWER: All who are connected or impacted by one Cancer Diagnosis.
- CONNECT: Newly Diagnosed Patients and Caregivers to our Globally Community
Ensuring that the Newly Diagnosed Patient are empowered with todays lifesaving information, TODAY!
