Newly Diagnosed
First Steps
As Newly diagnosed patients & caregivers
We do not know what we do not know, yet absolutely must.
We are in the same boat.
Some know how to row. Some don’t—yet.
Those who can row must teach. Those who can’t must learn.
We will help you help yourself. But you must row.
Treatment alone is not enough. We must learn to row—and row well.
To begin knowing (and rowing) please follow the five steps – momentum is your friend.
Order Your Free Patient Navigator Journal
Follow the steps—it breaks the overwhelming challenge into manageable pieces.
Order Your Free Journal Now
Get your printed copy delivered to your door.
The Patient Navigator Journal helps you respond to your diagnosis with clarity and confidence. It simplifies the complex and gives you a clear path forward—connecting science, your care team, and your own response.
Better understanding = Better engagement = Better outcomes.
What It Helps You Do:
✅ Know your path
✅ Build your medical team
✅ Break the challenge into small, manageable steps
✅ Dismantle fear and confusion by understanding the diagnosis
✅ Respond instead of react
While You Wait for Your Journal to Arrive:
Launch the Web-App Version Now
Start immediately while your printed journal is on its way.
- Learn about your diagnosis and tumour location
- Explore surgery options and second opinions
- Understand the value of biomarker testing
- Join our supportive online patient community
- Reach out anytime: claire@cholangio.org
We travel the path in steps—each one building on the last. One step at a time, this becomes your roadmap forward.
Community: Connect, Learn, and Take Action
Our private community of patients and caregivers offers a supportive and constructive space to learn, share, and grow together. The fastest way to learn is by connecting with those who have walked this path before you.
“Alone we can do so little; together we can do so much.”
— Helen Keller: A symbol of extraordinary resilience and achievement over seemingly impossible obstacles.
Join Our Facebook Group For Patients & Caregivers
Cholangiocarcinoma Australasia Community:
A dedicated space for patients and caregivers to exchange experiences, support one another, and navigate the journey together.
A dedicated space for patients and caregivers to exchange experiences, support one another, and navigate the journey together.
Join Our Facebook Group For Caregivers Only
Cholangiocarcinoma Caregivers & Support Network: A safe and understanding environment exclusively for caregivers to connect, share challenges, and support one another.
Meetings & Events
Online & In-Person – Open to All Members
A place to express, learn, and connect through:
✔ Group discussions & shared insights
✔ Guest speakers & expert talks
✔ Education sessions & resources
Join the Cholangio Challengers
Your Profile Page:
Share your story, post updates, and create your own fundraiser to support the foundation.
Invite friends and family to join by creating their own profiles—easy to share and even easier to make an impact.
✔ Create Your Profile Page
✔ Share Your Story
✔ Involve Family, Friends & Colleagues
✔ Start a Challenge or Support One
✔ Easy Setup & Social Media Integration
Need Help? Contact Claire at 0415 153 522 or Jill at 0418 799 926.
Stronger Together. Smarter Together.
Join, Learn, and Make an Impact.
Patient-Endorsed Medical Professionals
This list has been carefully assembled based on patient endorsements—real experiences from those who have walked this path.
Expertise in cholangiocarcinoma isn’t optional—it’s essential.
Having the right medical team isn’t just a choice; it’s a life-or-death decision.
We are still building this list so please email us.
Register for a Mentor: For Patients & Caregivers
Connect with someone who truly understands.
Speak with a mentor who has walked the same path—someone who has faced similar challenges and can help guide you through your journey with clarity, compassion, and real-world insight.
We’ll do our best to match you with a mentor who shares a similar diagnosis and location. While we can’t always guarantee immediate availability, we will always take your call—and we will always help you get started.
Why Connect with a Mentor?
✔ Gain insight from lived experience
✔ Stay focused and on the right path
✔ Discover options you may not have considered
You’re not alone.
Get the support, clarity, and encouragement you need—right from someone who’s been there.
Sign Up for the Email Newsletter ‘Cholangio Today’
This is an independent initiative not affiliated with the Cholangiocarcinoma Foundation Australia.
A patient-led global email newsletter magazine by Steve Holmes and his CancerDelt∆ team of innovators—
delivering clarity, updates, and breakthrough strategies in bile and bile-related GI cancers.
Medical Professional Registry
Patient-Endorsed
Help build a trusted registry by endorsing the clinicians who made a difference in your care
‘Cholangio Today’
This is an independent initiative not affiliated with the Cholangiocarcinoma Foundation Australia.
A patient-led global email newsletter magazine by Steve Holmes and his CancerDelt∆ team of innovators—delivering clarity, updates, and breakthrough strategies in bile and bile-related GI cancers.
