CCA Today is a blend of a newsletter, email digest, and magazine—crafted specifically for cholangiocarcinoma and other high-lethality bile-related cancers, such as liver and pancreatic cancers. Empowering patients empowers their support and increases survivorship. CCA Today seizes on the power of understanding to drive effective engagement.
Developed by Steve Holmes, a late-stage stage 4 cholangiocarcinoma survivor whose unexpected 1% survival inspired the creation of a unique patient-led cancer research and advocacy initiative, CCA Today targets gaps and unmet needs, breaks down silos that hinder or stop the delivery of significant benefits, and provides clear, accessible knowledge to patients, families, and medical professionals. Steve has cultivated a dynamic community of patients, caregivers, and advocates, gaining valuable insights from hundreds of interactions at the very coalface of this intense cancer battle. Operating every day on the razor-thin ledge of life, Steve didn’t just survive and leave—he went back to that ledge to help others navigate and survive it. Steve has developed a highly effective network of patients and caregivers into very effective and constructive peer-to-peer support teams who individually and collectively bring deep expertise and firsthand experience from the frontlines of life-and-death battles, shaping the future of empowered patient care. CCA Today benefits from this and goes on to centralise critical information in an easy-to-navigate format, ensuring that today’s patient remains at the centre of everything we do.
The future of cancer care is clear: Empower the patient—Increase Survival. Empower their support community—Exponentially Increase Survival. This is how we ensure the science, healthcare, and best practices evolve in the right direction as quickly as possible. Together, we can drive outcomes and bring constructive hope to those facing these deadly challenges.
To succeed over any high lethality cancer, we must be bold, creatively persistent, and willing to find and implement solutions. Cancers that arise from poor and toxic bile composition are silent, highly aggressive, and lethal. They need our attention, investigation, and transparency to mitigate, cure, and prevent. Prevention is an unmet and underrated factor that we address to save our at-risk populations—our family.
