Intrahepatic Cholangiocarcinoma – Diagnosis and Treatment
Fralin Biomedical Research Institute Timothy Pawlik, M.D., Ph.D. dives deep into discovering and treating intrahepatic cholangiocarcinoma
World Cholangiocarcinoma Day
Contribution and Sharing are powerful human elements in the cancer cure equation - this is my contribution.
Treat the Immune not the Cancer
A breakthrough by Dr Jim Allison Nobel Prize winner - we look into the Ipi /Nivo treatment, a two pronged attack on reactivating the T-Cell
What are Biomarkers
Biomarkers may be used to better understand some of the characteristics of your cancer. Getting tested for biomarkers helps your doctor decide what options are right for you.
PD-1 / PD-L1 is the Checkpoint Pathway
Learn how simple the PD-1 / PD-L1 Pathway is to understand - 4 short videos from easy to technical
A future look into Immuno-Oncology
what a line up! 2018 Nobel Prize winner James P. Allison, Philip D. Greenberg, M.D and Robert H. Vonderheide, Ph.D., and a fireside chat featured insights and opinions from Bristol-Myers Squibb's Vice President, Head of U.S. Oncology
1DH1 and TIBSOVO® (ivosidenib)
Phase 3 trial sees significant benefit as end point is achieved - The company plans to submit a supplemental new drug application for TIBSOVO® in previously treated IDH1 mutant cholangiocarcinoma by the end of 2019.
Blood Biopsies increasing MSI-high detection
A barrier to improved outcomes for many patients is the awareness and testing of MSI status
Ariella Chivil, Cancer Patient success – immunotherapy
Ariella Chivil, an Immunotherapy Advocate, shares her story of self-advocacy and resilience as a young survivor of Hodgkin lymphoma at the 2019 CRI Immunotherapy Summit in Boston.
Cholangiocarcinoma beyond the Blockade
Breakthroughs, Options and Opportunities opening up beyond the Check point inhibitor - beyond PD-1 and the T Cell
Mandy Wallace – NED Cholangiocarcinoma Patient
NED 7.5 years - I woke up on the morning of my 39th birthday with severe pain in my upper abdomen. By lunchtime I had to canceled my birthday party and went to hospital Emergency Department instead. The hospital concluded that I had gallbladder issues, so an ultrasound was scheduled and was sent home with given painkillers to await an ultrasound.
Cholangiocarcinoma and FGFR2
FGF and FGFR2 is a signalling pathway - Fibroblast growth factor signalling uses a fibroblast growth factor receptor (FGFR2) ligand during cell cycle and cell division. The ligand embeds itself into the cell membrane to recieve and deliver growth factors into the cell.
Gem/Cis gets nab-paclitaxel
So, knowing I had no clinical trials for them motivated me to try to write one and think of one that would be something anyone sitting in my clinical could be considered for because that’s what they need.
Scanxiety a new challenge and a special thank you
A Contradiction - It has been what seems like a very long, difficult and unusual battle / journey and with contradictions aside has passed in the blink of an eye.
Steve Holmes – Patient
A terminal diagnosis, that led to significant surgeries, treatments that failed, and then to a modern-day medical breakthrough in cancer
Patient Tool Kit
Tool Kit for the Newly diagnosed "The Patient Perspective is the collective sum of patient and caregivers experiences
Cholangiocarcinoma Network
Cholangiocarcinoma Australasia Support Network World Wide - Reaching for a Cure
The Luckiest Unlucky Guy – The Matt Reidy Story
The Matt Reidy story serves as a beacon for many. As each of us face off, endure or battle the oppressive CC Beast, we seek out the best pathway back to normality. Matt's story is different from many but he found his way back to his family and a new normality.
Immuno 101
An extract collection of material and articles that relate to Cholangiocarcinoma
Melinda Bachini’s Cholangiocarcinoma Story updated 2019
Melinda Bachini's Cholangiocarcinoma Story updated 2019 Mother of 6 and now a grandmother, a CC Champion Warrior from Bighorn USA
Susan Randolph Braden’s Can Sir Production
March 2019 has come roaring in like a lion, and like a Mama lioness, I have been aggressively battling my cancer predator this month.
Newly Diagnosed Cholangiocarcinoma Introduction pack
Cancer breakthrough -The Globally connected patient and caregiver knowledge, experiences and wisdoms - a collective the equips and empowers
Steve and Claire at the 2019 Cholangiocarcinoma Foundation Annual Conference
Steve and Claire at the 2019 Cholangiocarcinoma Foundation Annual Conference [...]
Genomic Testing – Know your mutations
Molecular Testing Know your Mutations , Information is powerful it improves outcomes
MSI Predictive Biomarkers GI
Experts John L. Marshall, MD, and Alan Venook, MD, comment on the evolution of testing for microsatellite instability (MSI) and tumor mutation burden (TMB
Progression Free Survival Increases regardless of PDL-1 Expressions
Progression Free [...]
Maria
Maria Shearer shares her story with Cholangiocarcinoma and founding The Cholangiocarcinoma Awareness Facebook Group Community. A Caregivers Story with a twist. Maria Shearer has endured and she has made a difference, she stepped out and up to help others.
Dr Charles Drake explains about Exhausted T Cells
Dr Charles Drake explains about Exhausted T Cells in immunotherapies [...]
Michael Lax sought a second opinion
Michael Lax sought a second opinion on Cholangiocarcinoma at UCSF [...]
Melinda Bachini’s Cholangiocarcinoma Patient Perspective
Melinda Bachini's Cholangiocarcinoma Patient Perspective on Adoptive Cell Therapy,
Treatment options improving for Cholangiocarcinoma
Treatment options improving for Cholangiocarcinoma with Kate Kelly encouraging clinicians to perform tumor profiling
The Immuno sliver bullet; is Immunotherapy a “silver bullet” or is it hype?
The Immuno sliver bullet; is Immunotherapy a “silver bullet” or [...]
Bile Ducts made easy – bile ducts, liver, stomach, pancreas, duodenum
Bile Ducts made easy - An easy to follow video on the relationship between the bile ducts, liver, stomach, pancreas, duodenum and more such as Ampular, Hepatic Artery . . .
Understanding the Cholangiocarcinoma Process and taking back control
Shared information is powerful it improves Outcomes What [...]
Chemotherapy and Cholangiocarcinoma
Chemotherapy and Cholangiocarcinoma - The future direction of Chemotherapy in [...]
As a Cholangiocarcinoma patient living in Australia
As a Cholangiocarcinoma patient living [...]
Cholangio Immuno Warrior strikes another blow on “Cholangio the Beast”
Hi everybody! I think its time for an update because I feel so many of you need some hope. More than ever. I have noticed there are fewer positive news in the last months.
Cholangiocarcinoma – Keytruda as a first line treatment option ?
Cholangiocarcinoma - Keytruda as a first line treatment option ? [...]
Simplifying Immunotherapy terminology
Simplifying Immunotherapy terminology. If you are like me then you [...]
Cholangiocarcinoma Patient- Steve Holmes – One Year on Keytruda
Cholangiocarcinoma Patient - Steve Holmes One year on Keytruda [...]
Cholangiocarcinoma – Bile duct cancer treatment hope a UK perspective
Cholangiocarcinoma - Bile duct cancer treatment hope, this is a [...]
Treatment of Intrahepatic Cholangiocarcinoma: A Disease on the Rise
Cholangiocarcinoma - Treatment of Intrahepatic Cholangiocarcinoma: A Disease on the [...]
Cholangiocarcinoma Patient – Porter Fox
Cholangiocarcinoma Patient Story - A Patients perspective by Perter Fox [...]
Cholangiocarcinoma Patient – Carol’s Story
Cholangiocarcinoma Patient - Carol's Story. Meet Carol and hear her [...]
Cholangiocarcinoma Patient – Lisa Craine
Cholangiocarcinoma patient - Lisa Craine. Lisa speaks at the 2017 [...]
Bile Duct Surgery and Injury
Cholangiocarcinoma Surgery - Society of American Gastrointestinal and Endoscopic Surgeons [...]
Rivi Litvin Cholangiocarcinoma Patient Story
Rivi Litvin's life turned on its head one day when [...]
Michael Lax Cholangiocarcinoma Patient Story
Michael Lax tells his Cholangiocarcinoma story of hope. In May [...]
Surgery for Bile Duct Cancer
Surgery for Bile Duct Cancer, There are 2 general types [...]
Investigating the Biliary RFA Procedure
Investigating the Biliary RFA Procedure for Extrahepatic Cholangiocarinoma Information improves [...]
Travis Roberts the Concrete Man
Cholangiocarcinoma Patient - Not Your Typical Cancer Patient - Cholangiocarcinoma [...]
Sarah Bennett & Linda Fleischer
Cholangiocarcinoma Warrior founder Sarah Bennett and her mother Linda Fleischer [...]
Medical advances improve Cholangiocarcinoma outcomes
Medical advances improve Cholangiocarcinoma outcomes... Patients with cholangiocarcinoma (bile [...]
Potential of Immunotherapy for Solid Tumors
Potential of Immunotherapy for Solid Tumors including Cancers of the [...]
Cholangiocarcinoma – About and Options by Mayo Clinic
Cholangiocarcinoma - Sumera H. Rizvi, MBBS. Gastroenterology fellow at Mayo [...]
Mayo Clinic on Cholangiocarcinoma 2014
Cholangiocarcinoma and the Mayo Clinic hepatobiliary surgeon, Rory Smoot, M.D., [...]
Cholangiocarcinoma and immunotherapy with Hoosier Cancer Research
Cholangiocarcinoma Trial - Learn about a phase II multi-center study [...]
Cholangiocarcinoma Trial decision making – Navigating the Clinical Trials Maze
Cholangiocarcinoma Trial decision making, In collaboration with the doctors of [...]
Katie Barker, University of Utah 2018, Cholangiocarcinoma and Nutrition
Cholangiocarcinoma and Nutrition and Gastro Intestinal Cancers information that needs [...]
Katie Kelley MD 2018 Cholangiocarcinoma Immuno & Targeted Therapies
Cholangiocarcinoma immunotherapy at the 2018 CCF Annual Conference [...]
Tim Greten, NIH 2018- Cholangiocarcinoma and Immunotherapy
Tim Greten, NIH 2018- Cholangiocarcinoma and Immunotherapy [...]
Cancer Immunotherapy: Will it work for your patient?
Immunotherapy, Cancer Immunotherapy: Will it work for your patient? [...]
Cholangiocarcinoma Lipika Goyal – the end of Cancer?
Cholangiocarcinoma; The Dawn of the Immunotherapy era and the beginning [...]
Cholangiocarcinoma, Robin Katie Kelley MD, 2017 Targeting the Tumor Microenvironment
Cholangiocarcinom; Targeting the Tumor Microenvironment in Cholangiocarcinoma and candidate bio [...]
Matt Reidy 2017 CCF Annual Conference
Matt Reidy 2017 CCF Annual Conference - a patients perspective [...]
Cholangiocarcinoma Treatment lmproving
THE INCIDENCE of cholangiocarcinoma is rising, and effective therapies are [...]
Adrienne Skinner Cholangiocarcinoma and Keytruda
Adrienne Skinner: Living Life to [...]
Keytruda works on Cholangiocarcinoma Patient
Keytruda works on Cholangiocarcinoma Patient. Adrienne Skinner of Larchmont, [...]
Keytruda may be a miracle cancer drug
Keytruda may be a miracle cancer drug but big questions are being asked about affordability to the people who need it most
Vyriad Expands Phase 1 Trial to Test Voyager-V1
Vyriad is expanding its ongoing Phase 1 clinical trial [...]
Rare Cancers Australia 33 Million Win
The Turnbull Government will provide $33 million to our world [...]
Cycling in the Chemo
Cancer hospital getting chemo patients on bikes to [...]
Bile Duct Cancer – How it develops and how to prevent it
Information improves our Outcomes What do you think about [...]
Capecitabine Improves Survival of Patients with Rare Cancer by Almost a Quarter
Information improves our Outcomes What do you think about [...]
CC with Andrew Clacher
“Having a cancer and no one knowing what it is, or what your fate’s going to be, or even if you’re going to be here in the next two years – it really makes you think about your mortality.”
Elishka’s Story
Choliangiocarcinoma: miss Cholangio was diagnosed in Oct 2015, after I had symptoms of menopause, it was already 7cm x 8cm in the liver, and wrapped around all three major blood vessels, so no surgery for me
Immunotherapy achieves dramatic results
Why does immunotherapy achieve dramatic results in some cancer patients but doesn’t help others? It is an urgent and vexing question for many cancer specialists.
Can Bile Duct Cancer’s follow the Melanoma lead
Patients with metastatic melanoma who are treated with pembrolizumab and achieve a complete response (CR) can maintain those responses for an extended period, even after discontinuation of the therapy, according to a new study.
Bayer enters the immunotherapy race
Bayer joins in . . .Loxo is trying to repeat the trick achieved by Merck & Co (known as MSD outside the US and Canada) when it secured approval for PD1 inhibitor Keytruda (pembrolizumab) for all cancers, regardless of location in the body
My walk with Cholangio the Beast
Hi all my name is Steve and this is my story . . . We are all Immortal until we are not . . . It was a very big shock to discover my own mortality.
Intrahepatic Cholangiocarcinoma – Diagnosis and Treatment
Fralin Biomedical Research Institute Timothy Pawlik, M.D., Ph.D. dives deep into discovering and treating intrahepatic cholangiocarcinoma
World Cholangiocarcinoma Day
Contribution and Sharing are powerful human elements in the cancer cure equation - this is my contribution.
Treat the Immune not the Cancer
A breakthrough by Dr Jim Allison Nobel Prize winner - we look into the Ipi /Nivo treatment, a two pronged attack on reactivating the T-Cell
What are Biomarkers
Biomarkers may be used to better understand some of the characteristics of your cancer. Getting tested for biomarkers helps your doctor decide what options are right for you.
PD-1 / PD-L1 is the Checkpoint Pathway
Learn how simple the PD-1 / PD-L1 Pathway is to understand - 4 short videos from easy to technical
A future look into Immuno-Oncology
what a line up! 2018 Nobel Prize winner James P. Allison, Philip D. Greenberg, M.D and Robert H. Vonderheide, Ph.D., and a fireside chat featured insights and opinions from Bristol-Myers Squibb's Vice President, Head of U.S. Oncology
1DH1 and TIBSOVO® (ivosidenib)
Phase 3 trial sees significant benefit as end point is achieved - The company plans to submit a supplemental new drug application for TIBSOVO® in previously treated IDH1 mutant cholangiocarcinoma by the end of 2019.
Blood Biopsies increasing MSI-high detection
A barrier to improved outcomes for many patients is the awareness and testing of MSI status
Ariella Chivil, Cancer Patient success – immunotherapy
Ariella Chivil, an Immunotherapy Advocate, shares her story of self-advocacy and resilience as a young survivor of Hodgkin lymphoma at the 2019 CRI Immunotherapy Summit in Boston.
Cholangiocarcinoma beyond the Blockade
Breakthroughs, Options and Opportunities opening up beyond the Check point inhibitor - beyond PD-1 and the T Cell
Mandy Wallace – NED Cholangiocarcinoma Patient
NED 7.5 years - I woke up on the morning of my 39th birthday with severe pain in my upper abdomen. By lunchtime I had to canceled my birthday party and went to hospital Emergency Department instead. The hospital concluded that I had gallbladder issues, so an ultrasound was scheduled and was sent home with given painkillers to await an ultrasound.
Cholangiocarcinoma and FGFR2
FGF and FGFR2 is a signalling pathway - Fibroblast growth factor signalling uses a fibroblast growth factor receptor (FGFR2) ligand during cell cycle and cell division. The ligand embeds itself into the cell membrane to recieve and deliver growth factors into the cell.
Gem/Cis gets nab-paclitaxel
So, knowing I had no clinical trials for them motivated me to try to write one and think of one that would be something anyone sitting in my clinical could be considered for because that’s what they need.
Scanxiety a new challenge and a special thank you
A Contradiction - It has been what seems like a very long, difficult and unusual battle / journey and with contradictions aside has passed in the blink of an eye.
Steve Holmes – Patient
A terminal diagnosis, that led to significant surgeries, treatments that failed, and then to a modern-day medical breakthrough in cancer
Patient Tool Kit
Tool Kit for the Newly diagnosed "The Patient Perspective is the collective sum of patient and caregivers experiences
Cholangiocarcinoma Network
Cholangiocarcinoma Australasia Support Network World Wide - Reaching for a Cure
The Luckiest Unlucky Guy – The Matt Reidy Story
The Matt Reidy story serves as a beacon for many. As each of us face off, endure or battle the oppressive CC Beast, we seek out the best pathway back to normality. Matt's story is different from many but he found his way back to his family and a new normality.
Immuno 101
An extract collection of material and articles that relate to Cholangiocarcinoma
Melinda Bachini’s Cholangiocarcinoma Story updated 2019
Melinda Bachini's Cholangiocarcinoma Story updated 2019 Mother of 6 and now a grandmother, a CC Champion Warrior from Bighorn USA
Susan Randolph Braden’s Can Sir Production
March 2019 has come roaring in like a lion, and like a Mama lioness, I have been aggressively battling my cancer predator this month.
Newly Diagnosed Cholangiocarcinoma Introduction pack
Cancer breakthrough -The Globally connected patient and caregiver knowledge, experiences and wisdoms - a collective the equips and empowers
Steve and Claire at the 2019 Cholangiocarcinoma Foundation Annual Conference
Steve and Claire at the 2019 Cholangiocarcinoma Foundation Annual Conference [...]
Genomic Testing – Know your mutations
Molecular Testing Know your Mutations , Information is powerful it improves outcomes
MSI Predictive Biomarkers GI
Experts John L. Marshall, MD, and Alan Venook, MD, comment on the evolution of testing for microsatellite instability (MSI) and tumor mutation burden (TMB
Progression Free Survival Increases regardless of PDL-1 Expressions
Progression Free [...]
Maria
Maria Shearer shares her story with Cholangiocarcinoma and founding The Cholangiocarcinoma Awareness Facebook Group Community. A Caregivers Story with a twist. Maria Shearer has endured and she has made a difference, she stepped out and up to help others.
Dr Charles Drake explains about Exhausted T Cells
Dr Charles Drake explains about Exhausted T Cells in immunotherapies [...]
Michael Lax sought a second opinion
Michael Lax sought a second opinion on Cholangiocarcinoma at UCSF [...]
Melinda Bachini’s Cholangiocarcinoma Patient Perspective
Melinda Bachini's Cholangiocarcinoma Patient Perspective on Adoptive Cell Therapy,
Treatment options improving for Cholangiocarcinoma
Treatment options improving for Cholangiocarcinoma with Kate Kelly encouraging clinicians to perform tumor profiling
The Immuno sliver bullet; is Immunotherapy a “silver bullet” or is it hype?
The Immuno sliver bullet; is Immunotherapy a “silver bullet” or [...]
Bile Ducts made easy – bile ducts, liver, stomach, pancreas, duodenum
Bile Ducts made easy - An easy to follow video on the relationship between the bile ducts, liver, stomach, pancreas, duodenum and more such as Ampular, Hepatic Artery . . .
Understanding the Cholangiocarcinoma Process and taking back control
Shared information is powerful it improves Outcomes What [...]
Chemotherapy and Cholangiocarcinoma
Chemotherapy and Cholangiocarcinoma - The future direction of Chemotherapy in [...]
As a Cholangiocarcinoma patient living in Australia
As a Cholangiocarcinoma patient living [...]
Cholangio Immuno Warrior strikes another blow on “Cholangio the Beast”
Hi everybody! I think its time for an update because I feel so many of you need some hope. More than ever. I have noticed there are fewer positive news in the last months.
Cholangiocarcinoma – Keytruda as a first line treatment option ?
Cholangiocarcinoma - Keytruda as a first line treatment option ? [...]
Simplifying Immunotherapy terminology
Simplifying Immunotherapy terminology. If you are like me then you [...]
Cholangiocarcinoma Patient- Steve Holmes – One Year on Keytruda
Cholangiocarcinoma Patient - Steve Holmes One year on Keytruda [...]
Cholangiocarcinoma – Bile duct cancer treatment hope a UK perspective
Cholangiocarcinoma - Bile duct cancer treatment hope, this is a [...]
Treatment of Intrahepatic Cholangiocarcinoma: A Disease on the Rise
Cholangiocarcinoma - Treatment of Intrahepatic Cholangiocarcinoma: A Disease on the [...]
Cholangiocarcinoma Patient – Porter Fox
Cholangiocarcinoma Patient Story - A Patients perspective by Perter Fox [...]
Cholangiocarcinoma Patient – Carol’s Story
Cholangiocarcinoma Patient - Carol's Story. Meet Carol and hear her [...]
Cholangiocarcinoma Patient – Lisa Craine
Cholangiocarcinoma patient - Lisa Craine. Lisa speaks at the 2017 [...]
Bile Duct Surgery and Injury
Cholangiocarcinoma Surgery - Society of American Gastrointestinal and Endoscopic Surgeons [...]
Rivi Litvin Cholangiocarcinoma Patient Story
Rivi Litvin's life turned on its head one day when [...]
Michael Lax Cholangiocarcinoma Patient Story
Michael Lax tells his Cholangiocarcinoma story of hope. In May [...]
Surgery for Bile Duct Cancer
Surgery for Bile Duct Cancer, There are 2 general types [...]
Investigating the Biliary RFA Procedure
Investigating the Biliary RFA Procedure for Extrahepatic Cholangiocarinoma Information improves [...]
Travis Roberts the Concrete Man
Cholangiocarcinoma Patient - Not Your Typical Cancer Patient - Cholangiocarcinoma [...]
Sarah Bennett & Linda Fleischer
Cholangiocarcinoma Warrior founder Sarah Bennett and her mother Linda Fleischer [...]
Medical advances improve Cholangiocarcinoma outcomes
Medical advances improve Cholangiocarcinoma outcomes... Patients with cholangiocarcinoma (bile [...]
Potential of Immunotherapy for Solid Tumors
Potential of Immunotherapy for Solid Tumors including Cancers of the [...]
Cholangiocarcinoma – About and Options by Mayo Clinic
Cholangiocarcinoma - Sumera H. Rizvi, MBBS. Gastroenterology fellow at Mayo [...]
Mayo Clinic on Cholangiocarcinoma 2014
Cholangiocarcinoma and the Mayo Clinic hepatobiliary surgeon, Rory Smoot, M.D., [...]
Cholangiocarcinoma and immunotherapy with Hoosier Cancer Research
Cholangiocarcinoma Trial - Learn about a phase II multi-center study [...]
Cholangiocarcinoma Trial decision making – Navigating the Clinical Trials Maze
Cholangiocarcinoma Trial decision making, In collaboration with the doctors of [...]
Katie Barker, University of Utah 2018, Cholangiocarcinoma and Nutrition
Cholangiocarcinoma and Nutrition and Gastro Intestinal Cancers information that needs [...]
Katie Kelley MD 2018 Cholangiocarcinoma Immuno & Targeted Therapies
Cholangiocarcinoma immunotherapy at the 2018 CCF Annual Conference [...]
Tim Greten, NIH 2018- Cholangiocarcinoma and Immunotherapy
Tim Greten, NIH 2018- Cholangiocarcinoma and Immunotherapy [...]
Cancer Immunotherapy: Will it work for your patient?
Immunotherapy, Cancer Immunotherapy: Will it work for your patient? [...]
Cholangiocarcinoma Lipika Goyal – the end of Cancer?
Cholangiocarcinoma; The Dawn of the Immunotherapy era and the beginning [...]
Cholangiocarcinoma, Robin Katie Kelley MD, 2017 Targeting the Tumor Microenvironment
Cholangiocarcinom; Targeting the Tumor Microenvironment in Cholangiocarcinoma and candidate bio [...]
Matt Reidy 2017 CCF Annual Conference
Matt Reidy 2017 CCF Annual Conference - a patients perspective [...]
Cholangiocarcinoma Treatment lmproving
THE INCIDENCE of cholangiocarcinoma is rising, and effective therapies are [...]
Adrienne Skinner Cholangiocarcinoma and Keytruda
Adrienne Skinner: Living Life to [...]
Keytruda works on Cholangiocarcinoma Patient
Keytruda works on Cholangiocarcinoma Patient. Adrienne Skinner of Larchmont, [...]
Keytruda may be a miracle cancer drug
Keytruda may be a miracle cancer drug but big questions are being asked about affordability to the people who need it most
Vyriad Expands Phase 1 Trial to Test Voyager-V1
Vyriad is expanding its ongoing Phase 1 clinical trial [...]
Rare Cancers Australia 33 Million Win
The Turnbull Government will provide $33 million to our world [...]
Cycling in the Chemo
Cancer hospital getting chemo patients on bikes to [...]
Bile Duct Cancer – How it develops and how to prevent it
Information improves our Outcomes What do you think about [...]
Capecitabine Improves Survival of Patients with Rare Cancer by Almost a Quarter
Information improves our Outcomes What do you think about [...]
CC with Andrew Clacher
“Having a cancer and no one knowing what it is, or what your fate’s going to be, or even if you’re going to be here in the next two years – it really makes you think about your mortality.”
Elishka’s Story
Choliangiocarcinoma: miss Cholangio was diagnosed in Oct 2015, after I had symptoms of menopause, it was already 7cm x 8cm in the liver, and wrapped around all three major blood vessels, so no surgery for me
Immunotherapy achieves dramatic results
Why does immunotherapy achieve dramatic results in some cancer patients but doesn’t help others? It is an urgent and vexing question for many cancer specialists.
Can Bile Duct Cancer’s follow the Melanoma lead
Patients with metastatic melanoma who are treated with pembrolizumab and achieve a complete response (CR) can maintain those responses for an extended period, even after discontinuation of the therapy, according to a new study.
Bayer enters the immunotherapy race
Bayer joins in . . .Loxo is trying to repeat the trick achieved by Merck & Co (known as MSD outside the US and Canada) when it secured approval for PD1 inhibitor Keytruda (pembrolizumab) for all cancers, regardless of location in the body
My walk with Cholangio the Beast
Hi all my name is Steve and this is my story . . . We are all Immortal until we are not . . . It was a very big shock to discover my own mortality.
Intrahepatic Cholangiocarcinoma – Diagnosis and Treatment
Fralin Biomedical Research Institute Timothy Pawlik, M.D., Ph.D. dives deep into discovering and treating intrahepatic cholangiocarcinoma
World Cholangiocarcinoma Day
Contribution and Sharing are powerful human elements in the cancer cure equation - this is my contribution.
Treat the Immune not the Cancer
A breakthrough by Dr Jim Allison Nobel Prize winner - we look into the Ipi /Nivo treatment, a two pronged attack on reactivating the T-Cell
What are Biomarkers
Biomarkers may be used to better understand some of the characteristics of your cancer. Getting tested for biomarkers helps your doctor decide what options are right for you.
PD-1 / PD-L1 is the Checkpoint Pathway
Learn how simple the PD-1 / PD-L1 Pathway is to understand - 4 short videos from easy to technical
A future look into Immuno-Oncology
what a line up! 2018 Nobel Prize winner James P. Allison, Philip D. Greenberg, M.D and Robert H. Vonderheide, Ph.D., and a fireside chat featured insights and opinions from Bristol-Myers Squibb's Vice President, Head of U.S. Oncology
1DH1 and TIBSOVO® (ivosidenib)
Phase 3 trial sees significant benefit as end point is achieved - The company plans to submit a supplemental new drug application for TIBSOVO® in previously treated IDH1 mutant cholangiocarcinoma by the end of 2019.
Blood Biopsies increasing MSI-high detection
A barrier to improved outcomes for many patients is the awareness and testing of MSI status
Ariella Chivil, Cancer Patient success – immunotherapy
Ariella Chivil, an Immunotherapy Advocate, shares her story of self-advocacy and resilience as a young survivor of Hodgkin lymphoma at the 2019 CRI Immunotherapy Summit in Boston.
Cholangiocarcinoma beyond the Blockade
Breakthroughs, Options and Opportunities opening up beyond the Check point inhibitor - beyond PD-1 and the T Cell
Mandy Wallace – NED Cholangiocarcinoma Patient
NED 7.5 years - I woke up on the morning of my 39th birthday with severe pain in my upper abdomen. By lunchtime I had to canceled my birthday party and went to hospital Emergency Department instead. The hospital concluded that I had gallbladder issues, so an ultrasound was scheduled and was sent home with given painkillers to await an ultrasound.
Cholangiocarcinoma and FGFR2
FGF and FGFR2 is a signalling pathway - Fibroblast growth factor signalling uses a fibroblast growth factor receptor (FGFR2) ligand during cell cycle and cell division. The ligand embeds itself into the cell membrane to recieve and deliver growth factors into the cell.
Gem/Cis gets nab-paclitaxel
So, knowing I had no clinical trials for them motivated me to try to write one and think of one that would be something anyone sitting in my clinical could be considered for because that’s what they need.
Scanxiety a new challenge and a special thank you
A Contradiction - It has been what seems like a very long, difficult and unusual battle / journey and with contradictions aside has passed in the blink of an eye.
Steve Holmes – Patient
A terminal diagnosis, that led to significant surgeries, treatments that failed, and then to a modern-day medical breakthrough in cancer
Patient Tool Kit
Tool Kit for the Newly diagnosed "The Patient Perspective is the collective sum of patient and caregivers experiences
Cholangiocarcinoma Network
Cholangiocarcinoma Australasia Support Network World Wide - Reaching for a Cure
The Luckiest Unlucky Guy – The Matt Reidy Story
The Matt Reidy story serves as a beacon for many. As each of us face off, endure or battle the oppressive CC Beast, we seek out the best pathway back to normality. Matt's story is different from many but he found his way back to his family and a new normality.
Immuno 101
An extract collection of material and articles that relate to Cholangiocarcinoma
Melinda Bachini’s Cholangiocarcinoma Story updated 2019
Melinda Bachini's Cholangiocarcinoma Story updated 2019 Mother of 6 and now a grandmother, a CC Champion Warrior from Bighorn USA
Susan Randolph Braden’s Can Sir Production
March 2019 has come roaring in like a lion, and like a Mama lioness, I have been aggressively battling my cancer predator this month.
Newly Diagnosed Cholangiocarcinoma Introduction pack
Cancer breakthrough -The Globally connected patient and caregiver knowledge, experiences and wisdoms - a collective the equips and empowers
Steve and Claire at the 2019 Cholangiocarcinoma Foundation Annual Conference
Steve and Claire at the 2019 Cholangiocarcinoma Foundation Annual Conference [...]
Genomic Testing – Know your mutations
Molecular Testing Know your Mutations , Information is powerful it improves outcomes
MSI Predictive Biomarkers GI
Experts John L. Marshall, MD, and Alan Venook, MD, comment on the evolution of testing for microsatellite instability (MSI) and tumor mutation burden (TMB
Progression Free Survival Increases regardless of PDL-1 Expressions
Progression Free [...]
Maria
Maria Shearer shares her story with Cholangiocarcinoma and founding The Cholangiocarcinoma Awareness Facebook Group Community. A Caregivers Story with a twist. Maria Shearer has endured and she has made a difference, she stepped out and up to help others.
Dr Charles Drake explains about Exhausted T Cells
Dr Charles Drake explains about Exhausted T Cells in immunotherapies [...]
Michael Lax sought a second opinion
Michael Lax sought a second opinion on Cholangiocarcinoma at UCSF [...]
Melinda Bachini’s Cholangiocarcinoma Patient Perspective
Melinda Bachini's Cholangiocarcinoma Patient Perspective on Adoptive Cell Therapy,
Treatment options improving for Cholangiocarcinoma
Treatment options improving for Cholangiocarcinoma with Kate Kelly encouraging clinicians to perform tumor profiling
The Immuno sliver bullet; is Immunotherapy a “silver bullet” or is it hype?
The Immuno sliver bullet; is Immunotherapy a “silver bullet” or [...]
Bile Ducts made easy – bile ducts, liver, stomach, pancreas, duodenum
Bile Ducts made easy - An easy to follow video on the relationship between the bile ducts, liver, stomach, pancreas, duodenum and more such as Ampular, Hepatic Artery . . .
Understanding the Cholangiocarcinoma Process and taking back control
Shared information is powerful it improves Outcomes What [...]
Chemotherapy and Cholangiocarcinoma
Chemotherapy and Cholangiocarcinoma - The future direction of Chemotherapy in [...]
As a Cholangiocarcinoma patient living in Australia
As a Cholangiocarcinoma patient living [...]
Cholangio Immuno Warrior strikes another blow on “Cholangio the Beast”
Hi everybody! I think its time for an update because I feel so many of you need some hope. More than ever. I have noticed there are fewer positive news in the last months.
Cholangiocarcinoma – Keytruda as a first line treatment option ?
Cholangiocarcinoma - Keytruda as a first line treatment option ? [...]
Simplifying Immunotherapy terminology
Simplifying Immunotherapy terminology. If you are like me then you [...]
Cholangiocarcinoma Patient- Steve Holmes – One Year on Keytruda
Cholangiocarcinoma Patient - Steve Holmes One year on Keytruda [...]
Cholangiocarcinoma – Bile duct cancer treatment hope a UK perspective
Cholangiocarcinoma - Bile duct cancer treatment hope, this is a [...]
Treatment of Intrahepatic Cholangiocarcinoma: A Disease on the Rise
Cholangiocarcinoma - Treatment of Intrahepatic Cholangiocarcinoma: A Disease on the [...]
Cholangiocarcinoma Patient – Porter Fox
Cholangiocarcinoma Patient Story - A Patients perspective by Perter Fox [...]
Cholangiocarcinoma Patient – Carol’s Story
Cholangiocarcinoma Patient - Carol's Story. Meet Carol and hear her [...]
Cholangiocarcinoma Patient – Lisa Craine
Cholangiocarcinoma patient - Lisa Craine. Lisa speaks at the 2017 [...]
Bile Duct Surgery and Injury
Cholangiocarcinoma Surgery - Society of American Gastrointestinal and Endoscopic Surgeons [...]
Rivi Litvin Cholangiocarcinoma Patient Story
Rivi Litvin's life turned on its head one day when [...]
Michael Lax Cholangiocarcinoma Patient Story
Michael Lax tells his Cholangiocarcinoma story of hope. In May [...]
Surgery for Bile Duct Cancer
Surgery for Bile Duct Cancer, There are 2 general types [...]
Investigating the Biliary RFA Procedure
Investigating the Biliary RFA Procedure for Extrahepatic Cholangiocarinoma Information improves [...]
Travis Roberts the Concrete Man
Cholangiocarcinoma Patient - Not Your Typical Cancer Patient - Cholangiocarcinoma [...]
Sarah Bennett & Linda Fleischer
Cholangiocarcinoma Warrior founder Sarah Bennett and her mother Linda Fleischer [...]
Medical advances improve Cholangiocarcinoma outcomes
Medical advances improve Cholangiocarcinoma outcomes... Patients with cholangiocarcinoma (bile [...]
Potential of Immunotherapy for Solid Tumors
Potential of Immunotherapy for Solid Tumors including Cancers of the [...]
Cholangiocarcinoma – About and Options by Mayo Clinic
Cholangiocarcinoma - Sumera H. Rizvi, MBBS. Gastroenterology fellow at Mayo [...]
Mayo Clinic on Cholangiocarcinoma 2014
Cholangiocarcinoma and the Mayo Clinic hepatobiliary surgeon, Rory Smoot, M.D., [...]
Cholangiocarcinoma and immunotherapy with Hoosier Cancer Research
Cholangiocarcinoma Trial - Learn about a phase II multi-center study [...]
Cholangiocarcinoma Trial decision making – Navigating the Clinical Trials Maze
Cholangiocarcinoma Trial decision making, In collaboration with the doctors of [...]
Katie Barker, University of Utah 2018, Cholangiocarcinoma and Nutrition
Cholangiocarcinoma and Nutrition and Gastro Intestinal Cancers information that needs [...]
Katie Kelley MD 2018 Cholangiocarcinoma Immuno & Targeted Therapies
Cholangiocarcinoma immunotherapy at the 2018 CCF Annual Conference [...]
Tim Greten, NIH 2018- Cholangiocarcinoma and Immunotherapy
Tim Greten, NIH 2018- Cholangiocarcinoma and Immunotherapy [...]
Cancer Immunotherapy: Will it work for your patient?
Immunotherapy, Cancer Immunotherapy: Will it work for your patient? [...]
Cholangiocarcinoma Lipika Goyal – the end of Cancer?
Cholangiocarcinoma; The Dawn of the Immunotherapy era and the beginning [...]
Cholangiocarcinoma, Robin Katie Kelley MD, 2017 Targeting the Tumor Microenvironment
Cholangiocarcinom; Targeting the Tumor Microenvironment in Cholangiocarcinoma and candidate bio [...]
Matt Reidy 2017 CCF Annual Conference
Matt Reidy 2017 CCF Annual Conference - a patients perspective [...]
Cholangiocarcinoma Treatment lmproving
THE INCIDENCE of cholangiocarcinoma is rising, and effective therapies are [...]
Adrienne Skinner Cholangiocarcinoma and Keytruda
Adrienne Skinner: Living Life to [...]
Keytruda works on Cholangiocarcinoma Patient
Keytruda works on Cholangiocarcinoma Patient. Adrienne Skinner of Larchmont, [...]
Keytruda may be a miracle cancer drug
Keytruda may be a miracle cancer drug but big questions are being asked about affordability to the people who need it most
Vyriad Expands Phase 1 Trial to Test Voyager-V1
Vyriad is expanding its ongoing Phase 1 clinical trial [...]
Rare Cancers Australia 33 Million Win
The Turnbull Government will provide $33 million to our world [...]
Cycling in the Chemo
Cancer hospital getting chemo patients on bikes to [...]
Bile Duct Cancer – How it develops and how to prevent it
Information improves our Outcomes What do you think about [...]
Capecitabine Improves Survival of Patients with Rare Cancer by Almost a Quarter
Information improves our Outcomes What do you think about [...]
CC with Andrew Clacher
“Having a cancer and no one knowing what it is, or what your fate’s going to be, or even if you’re going to be here in the next two years – it really makes you think about your mortality.”
Elishka’s Story
Choliangiocarcinoma: miss Cholangio was diagnosed in Oct 2015, after I had symptoms of menopause, it was already 7cm x 8cm in the liver, and wrapped around all three major blood vessels, so no surgery for me
Immunotherapy achieves dramatic results
Why does immunotherapy achieve dramatic results in some cancer patients but doesn’t help others? It is an urgent and vexing question for many cancer specialists.
Can Bile Duct Cancer’s follow the Melanoma lead
Patients with metastatic melanoma who are treated with pembrolizumab and achieve a complete response (CR) can maintain those responses for an extended period, even after discontinuation of the therapy, according to a new study.
Bayer enters the immunotherapy race
Bayer joins in . . .Loxo is trying to repeat the trick achieved by Merck & Co (known as MSD outside the US and Canada) when it secured approval for PD1 inhibitor Keytruda (pembrolizumab) for all cancers, regardless of location in the body
My walk with Cholangio the Beast
Hi all my name is Steve and this is my story . . . We are all Immortal until we are not . . . It was a very big shock to discover my own mortality.