This Centralised Knowledge Hub began its life as our personal library, a place to store the fast mounting information avalanche on Cholangiocarcinoma.
NOVEMBER 2016: Claire and I began from a base line of shock, overwhelm and disruption. We could not spell or pronounce such a word as Cholangiocarcinoma, which just added to our anxiety, stripping away any remaining poise or composure that we had. Claire began by just blindly digging with Doctor Google, she had no idea of what was to come, as she moved further into an endless search for tangible information of such a rare cancer.
Most search results lead Claire in the direction of the USA, Thailand and Vietnam. Other parts of the world including UK and Europe were very lean on useful data and projected more dire interpretations.
Claire’s searches for information was generating significant piles if not mountains of disconnected and random facts and theory’s – she needed help, so I built a basic website to house and file it all, our personal library on Cholangiocarcinoma.
As I felt up to it I categorised an evolved the website to suit our purposes, it also became clear that we should share our knowledge with others in the same predicament. We wanted to give other CC Warriors a better starting point than we had. The website was also a great place to house my own story and evolve it as I progressed through my journey, which I named “My Walk with Cholangio the Beast.”
Thats it…thats the origins of this Centralised Knowledge Hub on Cholangiocarcinoma. We have evolved this is Australasian based and with a view to align with other better resourced organisations such as CCF – The Cholangiocarcinoma Foundation based in the USA.
About Steve: www.steveholmes.net.au