A Centralised Knowledge Hub

By Patients & Caregivers for Patients & Caregivers

A Centralised Knowledge Hub
by Patients and Caregivers for Patients and Caregivers.

Hi there,
We are here to help support your efforts in achieving the best possible outcomes.
We do this by delivering “Today’s” knowledge, information & wisdom to you “Today.”  This is a powerful and tangible gift from your peers – Patients, Caregivers, Advocates, and supporters who have been before you – they/we, want you to succeed.

Please ensure you begin with the Patient Intro Kit, you need to form a basic information foundation before you proceed.

Please orientate yourself with the “Intro Kit” before proceeding.
Patient Intro Kit
Patient toolkit
Cholangio 101
Immuno 101
Genomic Profiling
Can you add to this list?

Email: Steve
Ph: +61415153522
FB Messenger

The Globally Connected Patient and Caregiver Collective continue to grow and empower the CCA effort around the globe. A collective of peer-to-peer Knowledge, Experience, and Wisdom.

Current list of communities
Meet our local Mentors and Advocates

We are available to help where we can.
Connecting, Sharing, and Asking Questions is a very healthy start

Help build this list?

Specific Directory for Australia & New Zealand Pateints

Please email claire@cholangiocarcinoma.com.au

We are looking for patient and caregiver recommended

  1. Surgeons
  2. Oncologists
  3. Dieticians
  4. GP’s
  5. Hospitals
  6. Radiography Centres

Other suggestions greatly appreciated

Regards Steve

NED (No Evidence of Disease) | Complete Remission

Is this you? Please share your story

Patients that had
Chemotherapy + Surgery + Immunotherapy and now ‘NED’
Patients that had
Chemotherapy + Immunotherapy only (ie no surgery) and now ‘NED’
Patients that had
Surgery + Chemotherapy and now ‘NED’
Patients that had a
Liver Transplant with or without Chemotherapy and now ‘NED’
Patients that had
Surgery only (No other treatment post-surgery) and now ‘NED’

Is this you? please contact Steve 

“Anything and Everything is possible, as long as I remain open to it. It allows my willingness to rise up from deep within, a bright beacon for opportunity and luck to find their way to me.”
Steve Holmes