A Centralised Knowledge Hub
By Patients & Caregivers for Patients & Caregivers
A Centralised Knowledge Hub
by Patients and Caregivers for Patients and Caregivers.
Hi there
we are here to help you
This is your patient and caregivers tool kit
Essential Checklist for the Newly Diagnosed
A Peer to Peer – Patient to Patient checklist of must-do’s to give you a head start. A gift of knowledge, experience, and wisdoms from those who know.
Live RSS Feed
- Five for Friday – 5 surveys that you can participate in
- Suzanne Kamel
- Cathryn McElvaney (nee Carman)
- Gary Wayne Jarrell
- CCF Awards $300,000 in Research Grants to Fund Early Career Investigators at Renowned Institutions
- 2021 Virgin Money London Marathon places
- Pets in Purple 2021 – Get creative with our ‘Purple pet pairing’ photo competition!
- NHS Cancer Programme team and COVID-19 updates
- AMMF’s Summer of ‘Fun’-raising ideas!
- The ABC-06 study – first results out …
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There are many groups and projects to view including Gallbladder which are also a cancer of the Bile Ducts and classified as a Cholangiocarcinoma
Meet the local Mentors
We are available to help where we can.
Connecting, Sharing, and Asking Questions is a very healthy start
- Ask a question in our Facebook Group
- Patient help; Steve Holmes | Australia | Extrahepatic | Whipple | Chemo | Immuno
Email steve@cholangiocarcinoma.com.au
Facebook & Messenger link - Patient help; Mandy Wallace | New Zealand | Intrahepatic | Liver Resection |Chemotherapy
Email moo1426@xtra.co.nz
Facebook and Messenger link - Caregiver help – Claire Holmes | Australia | Steve’s Wife
Email claire@cholangiocarcinoma.com.au
Facebook & Messenger link
List Building has begun
Cholangiocarcinoma Specific Directory for Australia & New Zealand
Please email claire@cholangiocarcinoma.com.au
We are looking for patient and caregiver recommended
- Surgeons
- Oncologists
- Dieticians
- GP’s
- Hospitals
- Radiography Centres
Other suggestions greatly appreciated
Regards Steve
+61415153522
steve@cholangiocarcinoma.com.au
Sharing hope
If you have achieved NED (No Evidence of Disease) or a Complete Remission please send your story to steve@cholangiocarcinoma.com.au
We will begin populating successful outcomes per category. The purpose is to provide CC Warriors more specific examples and connections relevant to their diagnosis and treatments.
Patients that had
Chemotherapy + Surgery + Immunotherapy and now ‘NED’
Matt Reidy (Keytruda}
Melinda Bachini (Adoptive T Cell Therapy)
Lisa Craine (5 recurrences to NED)
Steve Holmes (Keytruda)
Patients that had
Chemotherapy + Immunotherapy only (ie no surgery) and now ‘NED’
Patients that had
Surgery + Chemotherapy and now ‘NED’
Mandy Wallace
Mandy’s story coming soon
Patients that had
Surgery only (No other treatment post surgery) and now ‘NED’
Is this you ?
Patients that had a
Liver Transplant with or without Chemotherapy and now ‘NED’
Kara Thornhill Toronto Canada
Is this you ?
We simplify and deliver targeted Information to the Newly Diagnosed Patient and Caregiver. Empowering them with todays potentially life saving information, TODAY!
Hi there we are here to help you. This is your patient and caregivers tool kit
Essential Checklist for the Newly Diagnosed
A Peer to Peer – Patient to Patient checklist of must-do’s to give you a head start. A gift of knowledge, experience, and wisdoms from those who know.
Live RSS Feed
- Five for Friday – 5 surveys that you can participate in
- Suzanne Kamel
- Cathryn McElvaney (nee Carman)
- Gary Wayne Jarrell
- CCF Awards $300,000 in Research Grants to Fund Early Career Investigators at Renowned Institutions
- 2021 Virgin Money London Marathon places
- Pets in Purple 2021 – Get creative with our ‘Purple pet pairing’ photo competition!
- NHS Cancer Programme team and COVID-19 updates
- AMMF’s Summer of ‘Fun’-raising ideas!
- The ABC-06 study – first results out …
There are many groups and projects to view including Gallbladder which are also a cancer of the Bile Ducts and classified as a Cholangiocarcinoma
Meet the local Mentors
We are available to help where we can.
Connecting, Sharing, and Asking Questions is a very healthy start
- Ask a question in our Facebook Group
- Patient help; Steve Holmes | Australia | Extrahepatic | Whipple | Chemo | Immuno
Email steve@cholangiocarcinoma.com.au
Facebook & Messenger link - Patient help; Mandy Wallace | New Zealand | Intrahepatic | Liver Resection |Chemotherapy
Email moo1426@xtra.co.nz
Facebook and Messenger link - Caregiver help – Claire Holmes | Australia | Steve’s Wife
Email claire@cholangiocarcinoma.com.au
Facebook & Messenger link
List Building has begun
Cholangiocarcinoma Specific Directory for Australia & New Zealand
Please email claire@cholangiocarcinoma.com.au
We are looking for patient and caregiver recommended
- Surgeons
- Oncologists
- Dieticians
- GP’s
- Hospitals
- Radiography Centres
Other suggestions greatly appreciated
Regards Steve
+61415153522
steve@cholangiocarcinoma.com.au
Sharing hope
If you have achieved NED (No Evidence of Disease) or a Complete Remission please send your story to steve@cholangiocarcinoma.com.au
We will begin populating successful outcomes per category. The purpose is to provide CC Warriors more specific examples and connections relevant to their diagnosis and treatments.
Patients that had
Chemotherapy + Surgery + Immunotherapy and now ‘NED’
Matt Reidy (Keytruda}
Melinda Bachini (Adoptive T Cell Therapy)
Lisa Craine (5 recurrences to NED)
Steve Holmes (Keytruda)
Patients that had
Chemotherapy + Immunotherapy only (ie no surgery) and now ‘NED’
Patients that had
Surgery + Chemotherapy and now ‘NED’
Mandy Wallace
Mandy’s story coming soon
Patients that had
Surgery only (No other treatment post surgery) and now ‘NED’
Is this you ?
Patients that had a
Liver Transplant with or without Chemotherapy and now ‘NED’
Kara Thornhill Toronto Canada
Is this you ?
We simplify and deliver targeted Information to the Newly Diagnosed Patient and Caregiver. Empowering them with todays potentially life saving information, TODAY!
Happen on Life
I have always allowed myself to be a little unrealistic often,
it lifts me up and beyond the present moment, transcending me
to a place where my aspirations and dreams can bath in their reality.
Steve Holmes