What is CCA Australia?

Centralise – Simplify – Connect
A centralised Cholangiocarcinoma Community and knowledge Hub by Patients and Caregivers for Patients and Caregivers.

Patient Literacy and Enlightenment?

A grassroots patient-up initiative, CCA Australia’s “First-line” effort is to Educate, Equip and Empower the Newly Diagnosed Patient and Caregiver with highly Targeted & Current Information that gives them a starting point to best outcomes.

How do we do this/help you?

1. CCA Australia is built around a “Road Map to Best Outcomes” model.
2. CCA-specific “Intro” & “Patient Toolkit” is central to the Road Map Model
3. We connect you with your specific peer groups and other relevant connections.
4. We centralise, simplify and distill the collective knowledge, information & wisdom of successful Patients and Caregivers that have been before you.
5. Deliver “Todays” most current breakthrough information “Today”
6. Continue to find new initiatives that improve Patient Empowerment through awareness and implementation of what is learned.

Our biggest focus

1. Ensure all Newly Diagnosed Patients and their Caregivers receive a CCA Australia Patient Intro Kit at the point of diagnosis – no later
2. There are many breakthrough medical events occurring but information channels to the Newly Diagnosed Patient remain clogged and disenfranchised. We are focused on providing a resourceful information conduit that delivers ‘Todays’ breakthroughs ‘Today’ which in itself will increase much-improved patient outcomes.

Key milestone achievements to date

1. CCA specific digital Intro Kit 
2. CCA Specific digital Patient Toolkit
3. Physical Intro Kit & Patient Toolkit Notebooks are now in design mode.
4. Centralised Knowledge Resource
5. Australian and Globally Connected CCA Community
6. Framework for “Cholangiocarcinoma Foundation Australia“
7. Patient Mentoring (AU, NZ & Global)

CCA Australia is Globally Connected

Key connections/Associations
See all CCA Global Connections on home page 

1. Cholangiocarcinoma Foundation (USA)
2. CCF 2021 Sub Steering  Committee
3. CCF Conference Salt Lake City
4. CCA NZ
5. AMMF UK

How can you help us?

The People Resource is the X-factor in any successful human outcome. CCA Australia needs people of Character, Talent, and Connection at the centre of our initiative and effort, people who help transition CCA to the next level of reality – A reality and effort that can be measured and accountable in actual lives saved – not dollars raised.

Patients are dying too soon or needlessly from a lack of specific and relevant information at the time of diagnosis. It is our intention to change this “lack” and ensure every frontline medical provider delivers a CCA-Specific intro Kit to the Newly Diagnosed patient at the point of diagnosis – no later