A Centralised Knowledge Hub
By Patients & Caregivers for Patients & Caregivers
A Centralised Knowledge Hub
by Patients and Caregivers for Patients and Caregivers.
Hi there
we are here to help you
This is your patient and caregivers tool kit
Essential Checklist for the Newly Diagnosed
A Peer to Peer – Patient to Patient checklist of must-do’s to give you a head start. A gift of knowledge, experience, and wisdoms from those who know.
Recent Posts
Treat the Immune not the Cancer
A breakthrough by Dr Jim Allison Nobel Prize winner - …
What are Biomarkers
Biomarkers may be used to better understand some of the …
CCA 101 on PD-1 / PD-L1 Check Point Pathway
Learn how simple the PD-1 / PD-L1 Pathway is to …
A future look into Immuno-Oncology
what a line up! 2018 Nobel Prize winner James P. …
1DH1 and TIBSOVO® (ivosidenib)
Phase 3 trial sees significant benefit as end point is …
Blood Biopsies increasing MSI-high detection
A barrier to improved outcomes for many patients is the …
Ariella Chivil, Cancer Patient success – immunotherapy
Ariella Chivil, an Immunotherapy Advocate, shares her story of self-advocacy …
Cholangiocarcinoma beyond the Blockade
Breakthroughs, Options and Opportunities opening up beyond the Check point …
Mandy Wallace – NED Cholangiocarcinoma Patient
NED 7.5 years - I woke up on the morning …
Cholangiocarcinoma and FGFR2
FGF and FGFR2 is a signalling pathway - Fibroblast growth …
Live RSS Feed
- Pets in Purple 2021 – Get creative with our ‘Purple pet pairing’ photo competition!
- Five for Friday – 5 reasons why you should participate in research with Ciitizen
- Regina (Regi) Elizabeth Blair
- Five for Friday – 5 events to add to your calendar as we begin the new year
- Light It Green for Cholangiocarcinoma
- Sally Hoey
- AMMF’s Christmas Coffee Morning 2020
- AMMF’s CCA Patient & Carer Information Day
- The ABC-06 study – first results out …
- AMMF’s Amazing April!
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There are many groups and projects to view including Gallbladder which are also a cancer of the Bile Ducts and classified as a Cholangiocarcinoma
Meet the local Mentors
We are available to help where we can.
Connecting, Sharing, and Asking Questions is a very healthy start
- Ask a question in our Facebook Group
- Patient help; Steve Holmes | Australia | Extrahepatic | Whipple | Chemo | Immuno
Email steve@cholangiocarcinoma.com.au
Facebook & Messenger link - Patient help; Mandy Wallace | New Zealand | Intrahepatic | Liver Resection |Chemotherapy
Email moo1426@xtra.co.nz
Facebook and Messenger link - Caregiver help – Claire Holmes | Australia | Steve’s Wife
Email claire@cholangiocarcinoma.com.au
Facebook & Messenger link
List Building has begun
Cholangiocarcinoma Specific Directory for Australia & New Zealand
Please email claire@cholangiocarcinoma.com.au
We are looking for patient and caregiver recommended
- Surgeons
- Oncologists
- Dieticians
- GP’s
- Hospitals
- Radiography Centres
Other suggestions greatly appreciated
Regards Steve
+61415153522
steve@cholangiocarcinoma.com.au
Sharing hope
If you have achieved NED (No Evidence of Disease) or a Complete Remission please send your story to steve@cholangiocarcinoma.com.au
We will begin populating successful outcomes per category. The purpose is to provide CC Warriors more specific examples and connections relevant to their diagnosis and treatments.
Patients that had
Chemotherapy + Surgery + Immunotherapy and now ‘NED’
Matt Reidy (Keytruda}
Melinda Bachini (Adoptive T Cell Therapy)
Lisa Craine (5 recurrences to NED)
Steve Holmes (Keytruda)
Patients that had
Chemotherapy + Immunotherapy only (ie no surgery) and now ‘NED’
Patients that had
Surgery + Chemotherapy and now ‘NED’
Mandy Wallace
Mandy’s story coming soon
Patients that had
Surgery only (No other treatment post surgery) and now ‘NED’
Is this you ?
Patients that had a
Liver Transplant with or without Chemotherapy and now ‘NED’
Kara Thornhill Toronto Canada
Is this you ?
We simplify and deliver targeted Information to the Newly Diagnosed Patient and Caregiver. Empowering them with todays potentially life saving information, TODAY!
Hi there we are here to help you. This is your patient and caregivers tool kit
Essential Checklist for the Newly Diagnosed
A Peer to Peer – Patient to Patient checklist of must-do’s to give you a head start. A gift of knowledge, experience, and wisdoms from those who know.
Recent Posts
Treat the Immune not the Cancer
A breakthrough by Dr Jim Allison Nobel Prize winner - …What are Biomarkers
Biomarkers may be used to better understand some of the …CCA 101 on PD-1 / PD-L1 Check Point Pathway
Learn how simple the PD-1 / PD-L1 Pathway is to …A future look into Immuno-Oncology
what a line up! 2018 Nobel Prize winner James P. …1DH1 and TIBSOVO® (ivosidenib)
Phase 3 trial sees significant benefit as end point is …Blood Biopsies increasing MSI-high detection
A barrier to improved outcomes for many patients is the …Ariella Chivil, Cancer Patient success – immunotherapy
Ariella Chivil, an Immunotherapy Advocate, shares her story of self-advocacy …Cholangiocarcinoma beyond the Blockade
Breakthroughs, Options and Opportunities opening up beyond the Check point …Mandy Wallace – NED Cholangiocarcinoma Patient
NED 7.5 years - I woke up on the morning …Cholangiocarcinoma and FGFR2
FGF and FGFR2 is a signalling pathway - Fibroblast growth …
Live RSS Feed
- Pets in Purple 2021 – Get creative with our ‘Purple pet pairing’ photo competition!
- Five for Friday – 5 reasons why you should participate in research with Ciitizen
- Regina (Regi) Elizabeth Blair
- Five for Friday – 5 events to add to your calendar as we begin the new year
- Light It Green for Cholangiocarcinoma
- Sally Hoey
- AMMF’s Christmas Coffee Morning 2020
- AMMF’s CCA Patient & Carer Information Day
- The ABC-06 study – first results out …
- AMMF’s Amazing April!
There are many groups and projects to view including Gallbladder which are also a cancer of the Bile Ducts and classified as a Cholangiocarcinoma
Meet the local Mentors
We are available to help where we can.
Connecting, Sharing, and Asking Questions is a very healthy start
- Ask a question in our Facebook Group
- Patient help; Steve Holmes | Australia | Extrahepatic | Whipple | Chemo | Immuno
Email steve@cholangiocarcinoma.com.au
Facebook & Messenger link - Patient help; Mandy Wallace | New Zealand | Intrahepatic | Liver Resection |Chemotherapy
Email moo1426@xtra.co.nz
Facebook and Messenger link - Caregiver help – Claire Holmes | Australia | Steve’s Wife
Email claire@cholangiocarcinoma.com.au
Facebook & Messenger link
List Building has begun
Cholangiocarcinoma Specific Directory for Australia & New Zealand
Please email claire@cholangiocarcinoma.com.au
We are looking for patient and caregiver recommended
- Surgeons
- Oncologists
- Dieticians
- GP’s
- Hospitals
- Radiography Centres
Other suggestions greatly appreciated
Regards Steve
+61415153522
steve@cholangiocarcinoma.com.au
Sharing hope
If you have achieved NED (No Evidence of Disease) or a Complete Remission please send your story to steve@cholangiocarcinoma.com.au
We will begin populating successful outcomes per category. The purpose is to provide CC Warriors more specific examples and connections relevant to their diagnosis and treatments.
Patients that had
Chemotherapy + Surgery + Immunotherapy and now ‘NED’
Matt Reidy (Keytruda}
Melinda Bachini (Adoptive T Cell Therapy)
Lisa Craine (5 recurrences to NED)
Steve Holmes (Keytruda)
Patients that had
Chemotherapy + Immunotherapy only (ie no surgery) and now ‘NED’
Patients that had
Surgery + Chemotherapy and now ‘NED’
Mandy Wallace
Mandy’s story coming soon
Patients that had
Surgery only (No other treatment post surgery) and now ‘NED’
Is this you ?
Patients that had a
Liver Transplant with or without Chemotherapy and now ‘NED’
Kara Thornhill Toronto Canada
Is this you ?
We simplify and deliver targeted Information to the Newly Diagnosed Patient and Caregiver. Empowering them with todays potentially life saving information, TODAY!
Happen on Life
I have always allowed myself to be a little unrealistic often,
it lifts me up and beyond the present moment, transcending me
to a place where my aspirations and dreams can bath in their reality.
Steve Holmes